There are many support groups, websites and other resources available on the internet that may help parents, families and friends.
Organisations offering support and guidance
Please note, we are not formally linked with these groups and can't take responsibility for their content. If you would like to tell us about other support groups or organisations that you would like us to list here please contact us.
Every parent, family and situation is different. What helps one family, may not help another.
Twins Trust Bereavement Support Service is a compassionate resource dedicated to providing guidance and support to families navigating the loss of a twin or triplet. This devoted service offers a lifeline to parents and their families coping with the unique challenges of loss from a multiple birth. The service offers a range of support options including peer-to-peer connections, online communities and informational resources. To find out more visit our website: https://twinstrust.org/bereavement.html or contact us at bereavementsupport@twinstrust.org
Child Bereavement UK helps families to rebuild their lives when a child grieves or when a child dies.
The National Bereavement Care Pathway helps equip healthcare professionals to provide the best possible bereavement care to parents and families after pregnancy loss or the death of a baby.
EFCNI draws attention to the growing challenge of preterm birth and its significant impact on the children, families and our society.
Tiny Lives are an independent charity who supply items, funds, staff specialists and support to the RVI Neonatal Unit in Newcastle-upon-Tyne, helping to make the Neonatal experience a little easier and more comfortable for parents, babies, siblings and family.
Bliss exists to give every baby born premature or sick in the UK the best chance of survival and quality of life, championing their right to receive the best care by supporting families and campaigning for change.
Learning the Language of Grief: Telling a Twinless Twin About Their Twin. A story written by a mother of twins, one of whom died on the NICU. Kara Wahlin also works as a therapist in the US. There are several comments here from other mothers.
Sam and Finn is the original story of Kate Polley's twin sons, Sam and Finn. Kate wrote this first book after Sam died, to help her surviving twin, Finn and her other children to understand that we can experience the love and joy of a loved one, even when they are no longer with us here on earth. It is possible to order books and personalise the names in the book. You can read Kate's story on the parent stories page.
CLIMB - the Center for Loss in Multiple Birth, Inc. A website established in 1987 by parents from US, Canada, Australia, NZ and beyond who have experienced the death of one or more, both or all of our twins or higher multiples at any time from conception through birth, infancy and childhood.
Twinless Twins Support Group, Intl.™ (TTSGI) exists to help twins who have lost their twin. Their mission - to provide a safe and compassionate community for twinless twins to experience healing and understanding. We also provide support for twins and other multiples who have lost their twin due to death at any age. They have an active but closed Facebook group.
Lone twin network is a UK based voluntary support group run by and for lone twins, over the age of 18, whose loss has occurred at or around birth, in childhood or during adulthood. They also have many members from all over the world, but organise meetings in the UK, and have a closed Facebook group.
The links below are for support groups and organisations that are not specifically focused on twin loss / Butterfly but provide advice, support or resources related to baby loss.
Hand to Hold. A US based non-profit group aiming to provide comprehensive navigation resources and support programs to parents of preemies, babies born with special health care needs, and those who have experienced a loss due to these or other complications. Has a detailed resource library.
Baby loss awareness week is a UK based organisation is bringing together more than 40 charities helping bereaved parents, families and friends, to unite with others across the world to commemorate their babies’ lives. They aim to raise awareness about the issues surrounding pregnancy and baby loss, and push for tangible improvements in services, support, research or policy around bereavement support.
4Louis provide hospitals across the UK with memory boxes for stillbirth, neo-natal, infant and child loss, so angel parents can capture as many memories as they can.